Showing posts with label mental illness. Show all posts
Showing posts with label mental illness. Show all posts

Sunday, 5 February 2017

Bad Plant Mama

My colleagues got me a fancy Magma sketchbook for my birthday, and I've been filling its pages with some speed. It's a revelation to me how quick sketching is compared to the labour of love that is embroidery.

I've been feeling a little glum this past week. First and foremost, I hold the weather responsible; it has been grey and drizzly most of the time.

A symptom of depression which I didn't expect and which I didn't experience before I entered the world of work was feeling constantly tired. It is increasingly difficult to get up in the morning; the thought that gets me through the day is the possibility of sleep soon.

There are other side effects; over the last few weeks my bedroom became what I can only describe as a "depression pit". It got to the stage where I knew there were things I needed to use in there somewhere, but where they were was another question, as was summoning the energy to find out. I didn't want to see friends (especially of an evening, when doing so would take me away from the bed base camp), yet felt intensely lonely.

This was by no means a very serious depression, only impinging slightly on my life, but I thought it was best to be mindful and act. I took a duvet day on Thursday, went back to bed for an hour or so, then tackled the detritus of my room, and felt considerably better.

My plants don't seem to be enjoying the dark days either; several are rather droopy. To turn this on its head and avoid depression-exacerbated feelings of guilt and inadequacy as a #plantmama, I did a little drawing in my sketchbook.


I might do a series of related drawings; this one could be a good fit for several zines in the works. For now though, it's back to embroidery.

Sunday, 6 March 2016

Abnormal Feeling of Wellbeing

I have a huge backlog of blog posts to get through, and so I thought I would begin with a new project I am undertaking. Abnormal Feeling of Wellbeing is a lighthearted body of work about serious mental illness. Consisting of lists and mantras, illustrated infamous quotations on and historical allusions to the mind and observations on the absurdity of everyday life, it takes its title from a listed possible side effect of the antipsychotic drug Olanzapine. Reading this, it struck me that an abnormal feeling of wellbeing was precisely what I was aiming for, giving that I had been feeling abnormally unwell for half my life by that point.
The resulting works expand the notion of side effects and are hand embroidered on to vintage linens, overbearingly florid, so lovely as to be abject, naive and intricate. They are comprised of skewed self portraits and acrobatic word play, always looking at the power implicit in language; how language signifies sickness without spelling it out and can at other times imprison, but ultimately, when put into the hands of the marginalised rather than decreed to them, liberates.  

The piece below is a playful allusion to the phrase "she wouldn't say boo to a goose". 


This piece, List of Possible Side Effects, explores the other, less discussed, unusual side effects of Olanzapine; the sensation of "Walking through treacle", "Reduced dreaming" and "Unexpectedly finding oneself near cake", rounded off with the very bizarre side effect I read on that Olanzapine pamphlet. I "cheated" somewhat with this piece, as a very talented embroiderer of yesteryear has worked some incredible stem and satin stitch on to the cotton. All that was left for me to do was embroider the text in variegated blue thread, and bullet point each side effect with red gems anchored with pink beads, to pick up the tones in the roses.





Freudian Slipstitch is the third in the series, and is currently under construction, ready for its protagonist to be placed in the scene. After that, perhaps a series of handkerchiefs. Onwards and upwards!


Saturday, 30 January 2016

Pantone 4545

Apologies for the radio silence. I'm in a bit of a slump; too worn out to write. Too worn out to do much of anything; I have lots of ideas but no energy to put them into practice.

Luckily it's only thirteen days until I'm off to Scandinavia for what feels like a very necessary holiday (the number of days to count down feels most portentous!)

I have been able to do a little cutting and sticking in my visual diary, however; the cheat's route to creativity. There are some old drawings of mine (the first two pages) and some new ones by my friend Kat which she illustrated my birthday present wrappings with (the last two pages).

"Broken but happy" was the result I was given from one of those silly Facebook analyser/fortune teller apps which supposedly compromise your online security. It feels apt; I am a relentlessly optimistic depressive, at least, if an exhausted one. The Pantone postcard which is its neighbour, with its fetching shade of vomit blancmange, encapsulates depression for me; all is acrid and beige, the tumble weeds roll past your window, we're in Kansas forever more Toto, and there will never be any colour.

That being said, as an optimist, I can see the light at the end of the tunnel. I am seeing a very kind and incisive CBT therapist and trying to get on with things as best I can. I think I need a big yet reachable goal to work towards to give me a sense of purpose/calling. My big goal for 2016 was to have a solo exhibition, but that feels almost unimaginable at present. Perhaps a few months down the line things will be looking a bit brighter. Here's hoping!





Saturday, 10 October 2015

World Mental Health Day: Thoughts on the Dragon Cafe and Bobby Baker's Diary Drawings

In the run up to World Mental Health Day, I have been reflecting on my visit on Monday to the most extraordinary place. The Dragon Cafe is the UK's first mental health cafe, "a relaxing cafe and imaginative space, open to all." They certainly got the relaxing part right. It immediately put me on a level playing field, where I could be open about myself without judgement, and have a laugh with the like-minded. Perhaps surprisingly to the uninitiated, the Cafe was a hive of activity; Tai-Chi, gardening, filming of conversations about "re-covered" chairs, dance, and a workshop with the wonderful Daily Life Ltd (and more) featured in the few hours I was there. The food was delicious and the volunteers big-hearted. I spent my time drawing a big bowl of stew and dumplings, to explore cultural identity and heritage through sharing an illustrated feast on a white paper tablecloth with many others at Daily Life's workshop. The conversations were as warming as the satisfying stodge I drew on the paper.



My rather paltry (and unfinished) offerings to the table, alongside more delectable dishes


I spent several blissed out hours nattering away with Daily Life, until it was time for a "one-man play" which gave voice to one of the re-upholstered chairs. Referencing everyone from Blake to Bob Marley, the wordsmith's generous spirit was infectious, and he received riotous applause and laughter.

Bobby Baker of Daily Life Ltd, who I am beginning to think of as a punk rock fairy godmother, gave an illuminating talk on the Diary Drawings she drew first daily, then weekly, whilst a patient at a mental health day hospital. 

I had more than one moment of something more than empathy whilst listening to Bobby and looking at her drawings. Recognition; realisation that I wasn't the only one, that I perhaps wasn't as singularly and hopelessly mad as I had previously thought.


Two of Bobby's Diary Drawings; one portraying her time of weeping tidal waves of tears (another thing we have in common) and another asking how many hats can one woman wear?


Two drawings in particular led to this realisation; the first a drawing of Bobby's skin lifting away from her face like a mask, to reveal a demonic skull beneath. Bobby had shown this drawing to a mental health professional to try to explain her desperation; to seek help. It had not had the expected effect. The mental health professional asked for a copy. "I know a lot of people who feel like this" he said.

The second was perhaps more distressing. A distraught Bobby wept blood from her eyes, mouth and nose. Blood was something she had hallucinated frequently during her illness, she told us.

Aside from my immediate family and medical professionals, I have never (up 'til now) told anyone that I hallucinated blood when I was ill. Buckets of the stuff. Everywhere. I won't go into particularly grisly details, but suffice to say, it was not unlike the lift scene in The Shining. For someone who faints during blood tests and once had to go and lie down in a darkened room after reading a passage in The Bell Jar about self harm, it wasn't the most pleasant experience.

Bobby may feel she had her public "outing" via her Diary Drawings thrust upon her, but she could have said no. And as her son gruffly said when she consulted him about the matter, "It's got to be done, Mum." Showing the world at large how monstrous you feel beneath your exterior, exposing that vulnerability, is an act of extreme bravery. But we are not in fact monstrous. We have had monstrous things happen to us.

That's why I wanted to write about my psychotic symptoms (the hallucinations, the delusions) today. Because, aside from the occasional slight whiff of stiff-upper-lip-pull-up-your-bootstraps-ism when I am open about anxiety and depression, I do feel that society at large is beginning to understand and accept these illnesses. But mention that you have heard or seen things that others don't, or have had, as the mental health literature politely puts it, "unusual beliefs", and be prepared to brace yourself for the reaction.

If you have these symptoms, you have crossed over from being "run-down", from "having a lot on", from being "sensitive" or "over-tired" or "angsty". Congratulations, you are 100% genuine, prime cut bonkers. Even up to the middle of the last century, schizophrenia was classed as a degenerative illness, and this stigma still looms spectrally in the background. What comes into your mind when you read the word schizophrenic or psychotic? An unkempt vagrant moving erratically and mumbling to themselves? I would hope by this point we have moved beyond the facile stereotypes of mad axe murderers, although as recently as 2013 supermarkets were peddling "mental patient Halloween costumes" at this time of year.

How about a young woman with a first class honours degree, holding down a job, taking on self employed work, in a committed relationship and surrounded by friends, family, and love? Or an artist with a thirty year career, director of an Arts Council national portfolio organisation, who tours and exhibits internationally is one of the most patient and generous souls you could ever meet, and similarly has a whole host of family and friends who cherish her?

I'll admit, as Bobby said of herself, I am incredibly, incredibly lucky. Not everyone has back-up; people who love them and will fight for them. Which is why it is so important that we all fight for them. For all of us who have been touched by mental illness. Because there is no them and us; there's only us.

Please allow me, if it won't ring the alarm bells that I'm having one of my "funny turns", the liberty to see into the future. I can see a day, and it's not too far off, when the stigma is gone. When we have killed the most insidious and inextricably woven in part of mental illness; stigma, the real monster.

Monday, 28 September 2015

Fortitude Potion

One of my favourite young artists, Caitlin Hazell, once scribbled an illustration which read "I'm sad because I'm not Kate Bush". I'm sad at the moment, but I thought that Kate Bush might help rather than making me sadder still.

Therefore, this week's #secretsofselfpreservation potion borrows (or do "great" artists steal?) a line from one of her most beautiful songs, This Woman's Work; "I know you've got a lot of strength left." Because I do, despite what even I may believe. I have been in this place before, and I have come out the other side. I will be happy and healthy again, and I will work at it until I am.

Accompanying the words is a tiny LED light, which I thought made a good metaphor for a kernel of hope. It was gifted to me by a lovely lady at a workshop I was involved in at the weekend. More on that later, possibly. 

The concoction is named Fortitude Potion. Fortitude, I am told, is defined as strength of mind that enables a person to encounter danger or bear pain or adversity with courage. It might seem a little contradictory to be talking about strength of mind when in fact my mind is so vulnerable. But buried deep inside me is a stubbornness that won't let me give in. That wills me to keep going, like Sylvia Plath's "I am, I am, I am." A little lightbulb, if you will.








 Remember you can get involved too, via the hashtag #secretsofselfpreservation, by writing about a simple way you plan to, or already do, take care of yourself. Alternatively, you can create your own embroidered (or written on paper) potion - just remember to include the hashtag #secretsofselfpreservation along with your snaps of it.





Monday, 7 September 2015

I Get By Potion

I've been struggling lately. And what is the most important thing to do when you're struggling (other than admit it)? Ask for help. Call in the cavalry, get all the help you can get to get back on the ball.

That is what I have been trying to do, and that is why last week's #secretsofselfpreservation potion reads "It's ok to ask for help."

I didn't want to include any of the help-getting paperwork in the bottle as I'm feeling so wobbly, so, as last week was eating-out heavy, I included the business card for a lovely local restaurant, Orford Saloon.

"I Get By" is a Beatles reference of course, but also an allusion to the fact that sometimes simply getting by is the best we can hope for.










Remember you can get involved too, via the hashtag #secretsofselfpreservation, by writing about a simple way you plan to, or already do, take care of yourself. Alternatively, you can create your own embroidered (or written on paper) potion - just remember to include the hashtag #secretsofselfpreservation along with your snaps of it.

Thursday, 6 August 2015

Roving Diagnostic Unit

A few weekends ago I was asked by Daily Life Ltd to be an "expert" part of their Roving Diagnostic Unit at Shuffle festival. The plan was simple, though baffling to a number of people I explained it to before and after the event; use the language of the DSMIV to diagnose selected elements of the cemetery park where the festival is held.

The DSMIV, or Diagnostic Manual of Mental Disorders 5, is a means of categorising the mentally ill. 

The DSMIV encompasses everything from "schizotypal personality disorder", (which I was once told by a medical professional I "probably had") characterised by eccentric dress and behaviour (otherwise known as being an interesting person), to the recently adopted "emotionally unstable personality disorder", which I consider one of the most abhorrent labels you can give a distressed human being. 

In earlier incarnations, the DSMI categorised homosexuality as not only "deviance" but mental illness, and made a distinction between psychosis and neurosis and never the twain shall meet (I am living proof that the two are inextricably interwoven).

As we began to diagnose the bins, benches and ponds of the cemetery park, the biased, arbitrary, reductive nature of the DSMIV became more and more apparent. How can an effective diagnosis be made after spending only a few minutes with a patient? What are the ethical implications of standing around talking about a subject who cannot talk back? Bobby Baker, leader of our troupe of "experts", related this to her own experiences of being on a ward round, unable to speak for herself as twenty medical professionals "observed" her. I was reminded of my own experience of being incredibly distressed, half dressed in my untidy bedroom, whilst medical professionals invaded this most personal of spaces "for my own good".

The tours of the cemetery park our merry band made revealed further categorisations which had little to do with the DSMIV; the bench and bin, man-made objects, were broadly categorised as deeply troubled, whereas the pond, though overgrown and unkempt, was diagnosed as working its way through its troubles, and the tree, splitting off in many directions (dissociative identity disorder?), was generally felt to be coping and developing its personality normally.

This speaks of a tendency to idolise that which is "natural" over that which is "artifical", which is seen in everything from the #eatclean Instagram craze to unfortunate conversations I have had where I have been asked if I am "dependent" on the psychiatric medication which, you know, keeps me alive (I wonder if the people who asked would ask the same of a diabetic who takes insulin?) This in turn reminds me of the hysterics I was in when I read in the leaflet that comes with my anti-psychotic medication that it may lead to an "abnormal feeling of wellbeing"; an abnormal feeling of wellbeing was kind of what I was going for, given that my "natural" state leaves me feeling like I can't go on.

It is always so refreshing being with Daily Life and the people they bring together; knowing you can give an honest answer to the question "How are you?" Knowing you are amongst people who have had the same experiences and won't treat you with kid gloves or from a safe distance "for detonation".

I eagerly anticipate the development of this project; Viva La Roving Diagnostic Unit!










Tuesday, 21 July 2015

Stigma Smashing Potion

Earlier this week I was talking to some people I think of as fairly broad minded. I mentioned a mental health issue because it was relevant to the conversation, and something remarkable happened; there was a sharp intake of breath. It shocked me. Safely ensconced in the bubble of my network of likeminded (in oh so many more ways than one!) people, I forgot the "us and them" mentality of the man or woman on the street; the dichotomy of "we are well, happy and safe - they are mentally ill and dangerous" which fab mental health awareness campaign Only Us wants to dismantle.

There is also something of a hierarchy of mental illness, with depression and anxiety the "acceptable" bottom (the common cold of mental illness, I like to call them) and hearing voices and unusual thoughts and beliefs at the "unacceptable, dangerous" top.

As someone who has rather run the gauntlet of mental health and come out both stronger and more cynical about society's opinions on the matter, I stitched the phrase "Being your authentic self is a revolutionary act" for this week's #secretsofselfpreservation potion. But it's not just about blowing my own trumpet; I really believe that anyone being their authentic self is revolutionary. How often in our day to day lives, when asked how we are by a colleague or acquaintance, respond "Fine, thanks", when we are anything but? Or indeed, when we are brimming over with joy.

It's almost as if emotion itself is to be policed, and if it tips too far over into negative or positive, it too is "unacceptable".

I had a conversation with a friend the other week in which we both agreed that learning to accept the fact that we were emotional people was probably a good thing. Better to be emotional and irrational than a scary robot!

This fear of emotion is of course also sexist; the centuries-old binary of man/woman = rational/emotional. This leads to internalised misogyny which I know I myself am guilty of.

I was afforded a professional opportunity to be my authentic self last week, and I was a little shocked when good came from it. But thinking about it, people warm to people who are palpably human; who have perceived "flaws" and are honest about who they are.

To accompany the stitched words, inside the potion bottle I added cut up phrases from the "Wellness and Recovery Plan" I was given by a mental health practitioner when recovering from a period of serious illness. This plan was never mentioned again, and reading it back, the idea that a bubble bath can stop you sliding into paranoia and psychosis is slightly laughable. But the intentions are good, and so I picked a few phrases which seemed pertinent to include; "Ambitions and dreams", "When things are breaking down", and "What I am like when I am well".

The potion is entitled "Stigma Smashing Potion", which is just what I intend to do.







Remember you can get involved too, via the hashtag #secretsofselfpreservation, by writing about a simple way you plan to, or already do, take care of yourself. Alternatively, you can create your own embroidered (or written on paper) potion - just remember to include the hashtag #secretsofselfpreservation along with your snaps of it.

Saturday, 2 May 2015

Expert Advisory Day

Today I had arranged to go to Chinatown with some friends, but they cancelled (due to perfectly valid reasons). However, nothing can come between me and dim sum, so I went by myself. It may not seem like much, but I felt like it was an important step, and demonstrates just how comfortable in my own company nowadays; there have been times in my life when I haven't been able to go out at all. There have been other times when I have gone to a restaurant and embarrassed my significant other by wolfing down my food and hightailing out of there, so convinced in my paranoia that other diners and staff were watching and talking about me, and could somehow tell there was something wrong with me just by looking.

Today I spilt half a cup of tea on the tablecloth, mopped it up with a napkin, and thought no more of it. And yes, that does feel like an important step.

I have been thinking a lot about mental health this week, as well as food. On Monday I went to an "expert advisory day" organised by the delectable Daily Life Ltd. Daily Life is an arts and mental health organisation collaborating with, and co-producing the work of, individuals and artists with experience of mental distress. Daily Life is headed by Bobby Baker, an artist about whom Nigel Slater said "I would go without food for a week just to get a ticket for her next show". I'm inclined to agree with him. I have been lucky enough to have been invited along to a couple of Daily Life events since first seeing Bobby and Co. present Mad Gyms and Kitchens back in 2012. I have written about the Experts By Experience workshop, run in collaboration with Jake Spicer of Draw Brighton here, and the resulting exhibition, The Expert View (in which a teeny weepy drawing by yours truly featured), here.

The purpose of the expert advisory day was for Daily Life to bring us up to speed on their activities and ambitions, to discuss language and the media around mental health, strategies around being a mentally ill artist and getting work out there, quality control in disability arts, and finally to share our work with likeminded (obviously in more ways than one!) peers.

It didn't take long for my blood to boil. This was brought on by our discussion around representation in the media. I was glad to hear that Bobby, as well as many of the other artists and activists present, feel a sense of disparity between all that we can offer as people with varied and unique life experiences (which often lead to us having a greater sense of empathy and social justice, as well as providing a rich seam of strikingly original ideas and creativity), and media and political portrayals of "the mentally ill" as "burdens", or, as I put it, "the great unwashed".

I doubt many people, on first meeting me, would be able to tell I have a mental illness (well, if they didn't take the bright clothes and pom pom earrings at face value, anyhow!) I'm bubbly, upbeat, friendly, and at first glance, confident. Not society's view of people who have had some of the life experiences I have; I rather suspect the tabloid press would instead expect me to be blithering in a corner.

It's almost as if the attitude to disabled people in general is that we are a problem to be solved, and, in extreme cases, that we originated the source of that problem ourselves. This is the medical model of disability. The social model is that society should accommodate the so-called "disabled", and give them every opportunity to not be a burden and instead make the most of their abilities; to contribute.

I mentioned sitcoms such as the pervasive Big Bang Theory, in which characters fairly regularly "accuse" each other of "acting totally psychotic". So often I have wished I could tell the writers of these shows that the word they are searching for is "psychopathic", and that they probably don't mean that their characters are being talked at by the washing machine (true story).



Misuse of language is not restricted to low-brow entertainment, either; in academic texts, slippery and changeable literature is sometimes referred to as "schizophrenic". The words these writers are searching for are "dissociative identity disorder". They are rather making the same mistake as Celtic fans did when they learned one of the team's players was schizophrenic and began chanting "Two Andy Gorams, there's only two Andy Gorams" at matches.

Luckily, despite our ranting and the odd #crazypersonproblems joke, we were there to talk about the work. Bobby shared with us the history of her career, struggles and triumphs as an artist, with her trademark warmth and generosity. Aidan Moseby presented his linguistic and empathetic ingenuity. It was fabulous to meet Jacqui Dillon, chair of the Hearing Voices Network, to know that there are so many people out there like me, we're not completely abnormal, and there is peer support for us. James, aka thevaccuumcleaner, talked about his deceptively simple utopic asylum project Mad Love, and his upcoming performance of his one-man show, Mental, in Sigmund Freud's bedroom, which I am so excited about.

Next week, on Thursday the 7th (election day!) and Friday 8th May, Daily Life Ltd are presenting their first micro festival. The Expert View brings together the work of Bobby and Daily Life and a whole host of artists, organisations and activists. These include Selina Thompson, who makes big-hearted, challenging, participatory performance art I could watch again and again, Jacqui of the Hearing Voices Network talking about her work in more detail (which unfortunately I won't be around for, but you should hear Jacqui speak if you can), and oh so many more. I'm gutted I can't get around to see it all, it's such an exciting prospect. Perhaps converse to your expectation of an arts and mental health festival, I guarantee that you will leave feeling elated. I always do when I spend time in the presence of these wonderful people. They are the future, and I am more than up for the ride there.


Wednesday, 3 September 2014

Experts by experience


Remember I talked about crying and making art about crying yesterday? Well, today I am reeling from doing the same; making art about crying, but not actually doing the crying itself; from laughing and smiling and making and chatting and absorbing and opening up and being receptive and empathising and oh, the list goes on and on.


You see, I attended a very special workshop today; facilitated by the brilliant Jake Spicer of Draw Brighton, it was run in participation with the also rather brilliant Daily Life Limited, set up by art hero Bobby Baker and based in Stratford (where Pip's from and a short bus ride from me, coincidentally).


I'd met Bobby very briefly once before, when my dear friend Jess and I went to see her performance Mad Gyms and Kitchens at the Barbican. I did write about my experience there, but unfortunately it has been lost in the annals of the internet. Suffice to say it was a practice (if not life) changing experience. Bobby was lovely to meet then, and she was lovely to meet today too, as was Jake, the rest of the Daily Life Limited team who were present, and the other artists participating in the workshop.


The workshop was based around the idea that people who experience mental ill health are experts by experience, and more generally, who is an expert/what makes an expert?


It was suggested (though by no means prescribed) that we consider what we were experts in/of in our drawing experiments. I drew myself as an expert at crying and an expert at eating. 

Thankfully I don't cry as much as I used to, though I'm sure my many years of unwavering service to tear-letting still qualify me as a professional weeper of some expertise.

Eating is a funny one; it would be hard not to be an expert at eating in my rather food-centric family. However, when I am unwell it's often the first thing to go out of the window. It becomes a way of punishing myself for my many perceived failings. I am happy to report that for now, however, my eating is prolific and unlikely to wane in quantity or quality.




The workshop was a particularly interesting one to undertake whilst I'm looking for work. I have a funny feeling that a lot of "expertise" is blagging anyway.




Aside from the self-portraits, I was back to portraying potions (and emergency glitter!), which I plan to bring back into my practice in a big way in the near future.




The most lovely thing about today was meeting so many like-minded individuals (in more ways than one). Even at art school, people weren't necessarily open about mental health, and my fellow workshop participants today just made sense to me. If anything, they were more sane than a lot of people I've met who haven't been through the mental health mill.








I now feel invigorated to go out into the world and make some damn art! Thank you, Bobby, Jake, and co!